Ted Eytan, MD's Photo Friday

Thanks to Ted Eytan, MD for featuring Jane Sarasohn-Kahn and me as the "Photo Friday" models of the week. The photo was taken at the start of our testimony before NCVHS on the future of PHRs.

NCVHS: Report of Hearing on "Meaningful Use" of Health Information Technology

The National Committee on Vital and Health Statistics (NCVHS) has issued its initial Report of Hearing on "Meaningful Use" of Health Information Technology.

The May 18,2009 report is directed to David Blumenthal, MD, National Coordinator of Office of the National Coordinator for Health Information Technology. The cover letter indicates that NCVHS will be sending additional observations related to the hearing.

The Hearing on "Meaningful Use" of Health Information Technology was held on April 28-29, 2009. More information about the hearing can be found at the NCVHS website, including a copy of the hearing transcript and copies of the individual written testimony submitted by those individuals who testified at the hearing. You can also listen to a recorded version of the hearing in the NCVHS hearing archives.

ONC Developing Online Project To Educate Consumers About PHRs

Government Health IT reports that the the Office of the National Coordinator (ONC) is developing an online model containing information for consumers about personal health records (PHRs) and the privacy policies related to their use. ONC's effort appears targeted at engaging consumer to make more informed decisions about the use of PHRs.

The Office of the Secretary for HHS issued a notice of Agency Information Collection Request and 30 day Comment Request, 74 Federal Register 24012 (May 22, 2009), providing details of the proposed project.

If others have additional information on this project -- please leave a comment.

The abstract in the Federal Register notice states:

A new health information technology, the personal health record (PHR), seeks to provide consumers with the capability to directly manage their own health information. Although PHRs can exist in different formats or media (i.e., paper or electronic), the term usually refers to an online record containing an individual’s personal health information. PHRs typically include information such as health history, vaccinations, allergies, test results, and prescription information. Given the newness of the electronic PHR concept, the different ways to establish PHRs, and the sensitivity of personal health information, ONC is taking steps to establish that useful facts about PHRs and PHR privacy policy information be made available to consumers so they can make informed decisions about selecting and using PHRs. Toward this end, ONC has a project to develop an online model for PHR providers.

The model will be developed to:

› Allow presentation of important PHR facts and policies to consumers,

› Allow consumers to understand and consistently compare PHR service provider policies with others, and

› Focus on the key information that may influence decisions and choices of PHR service provider.

The project includes iterative rounds of in-depth consumer testing during April–October 2009 to assess and analyze consumer understanding and input about the model. The model will be iteratively revised to design a final template that will allow PHR vendors to convey useful and understandable facts to consumers about their privacy, security, and information management policies. Testing will be conducted in six locations that cover the four geographic census regions and will include 90-minute, one-on-one, cognitive usability interviews with six to seven participants at each of six sites, for a total not to exceed 42 interviews. In addition, each participant will have been recruited through a 15-minute screening interview. The participants will be recruited according to U.S. census statistics for race/ethnicity, age, marital status, gender, and income. Also, the sample will include participants both familiar and unfamiliar with PHRs and participants who manage chronic health issues or a disease for themselves or others.

X PRIZE: $10M Incentive to Innovate In Health Care (Reform)

Scott Shreeve, MD, Senior Health Advisor at the X PRIZE Foundation sent out a call last week to all health care bloggers to participate in a blog rally to promote the idea and effort behind the Healthcare X PRIZE competition. Below is a message from Dr. Sheeve being post around the blogosphere today. Please spread the word via your blog, Facebook, Twitter or the old fashion way -- telling someone face to face.

We are entering an unprecedented season of change for the United States health care system. Americans are united by their desire to fundamentally reform our current system into one that delivers on the promise of freedom, equity, and best outcomes for best value. In this season of reform, we will see all kinds of ideas presented from all across the political spectrum. Many of these ideas will be prescriptive, and don’t harness the power of innovation to create the dramatic breakthroughs required to create a next generation health system.

We believe there is a better way.

This belief is founded in the idea that aligned incentives can be a powerful way to spur innovation and seek breakthrough ideas from the most unlikely sources. Many of the reform ideas being put forward may not include some of the best thinking, the collective experience, and the most meaningful ways to truly implement change. To address this issue, the X PRIZE Foundation, along with WellPoint Inc. and WellPoint Foundation as sponsor, has introduced a $10M prize for health care innovators to implement a new model of health. The focus of the prize is to increase health care value by 50% in a 10,000 person community over a three year period.

The Healthcare X PRIZE team has released an Initial Prize Design and is actively seeking public comment. We are hoping, and encouraging everyone at every opportunity, to engage in this effort to help design a system of care that can produce dramatic breakthroughs at both an individual vitality and community health level.

Here is your opportunity to contribute:

1. Download the Initial Prize Design
2. Share you comments regarding the prize concept, the measurement framework, and the likelihood of this prize to impact health and health care reform.
3. Share the Initial Prize Design document with as many of your health, innovation, design, technology, academic, business, political, and patient friends as you can to provide an opportunity for their participation

We hope this blog rally amplifyies our efforts to solicit feedback from every source possible as we understand that innovation does not always have a corporate address. We hope your engagement starts a viral movement of interest driven by individual people who realize their voice can and must be included. Let’s ensure that all of us - and the people we love - can have a health system that aligns health finance, care delivery, and individual incentives in a way that optimizes individual vitality and community health. Together, we can ensure the best ideas are able to come forward in a transparent competition designed to accelerate health innovation. We look forward to your participation.

This post was written by Scott Shreeve, MD in behalf of the X PRIZE Foundation. Special thanks to Paul Levy for both demonstrating the value of collaborative effort and suggesting we utilize a blog rally for this crowdsourcing effort.

Modern Day Hatfield-McCoy: Google Health and Microsoft HealthVault

The Hatfields and McCoys, a metaphor for a modern day high-tech industry rivalry centered on personal health records (PHRs) involving Google Health, Microsoft HealthVault and other PHR vendors. An image that a West Virginia health care lawyer can really appreciate.

Thanks to a tweet by @2healthguru for pointing out the CNET article, Microsoft, Google in healthy competition. The article provides a good overview of the developing PHR movement and some insight into the future. However, I'm a bit concerned by the accuracy of the article when I see two of the individuals mentioned in the article (Matthew Holt and Dave deBronkart) tweeting (here and here) that they weren't really interviewed for the article.

Later this week I will be in D.C.along with others testifying at the Hearing on Personal Health Records before the National Committee on Vital and Health Statistics (NCVHS), Subcommittee on Privacy, Confidentiality and Security . The Subcommittee is looking at the future of the PHR marketplace and consumer-facing health information technology.

The story of the Hatfield-McCoy feud is woven into the fabric of southern West Virginia lore along the Tug River and well known by all West Virginians. Above is a photo of the West Virginia Hatfield clan around 1897, led by Devil Anse Hatfield, second from the left. For more history and photos check out the West Virginia Division of Culture and History.

Note: If you are into off-road vehicle trails, come visit West Virginia and check out the modern day version -- the Hatfield-McCoy Trails.

ONC Releases HIT ARRA Implementation Plan

The Office of the National Coordinator for Health Information Technology (ONC) has released an operating plan titled the Health Information Technology American Recovery and Reinvestment Act (ARRA) Implementation Plan.

The operating plan is included on the DHHS Agency Wide Plan page under the "List of Recovery Programs within HHS."

The operating plan outlines immediate actions to meet statutory requirements under the Health Information Technology for Economic and Clinical Health Act (HITECH) provisions of the ARRA. The

The topic headings for the operating plan include:

A. Funding Table
B. Objectives
C-E. Activities, Characteristics and Delivery Schedules
F. Environmental Review Compliance
G. Measures
H. Monitoring/Evaluation
I. Transparency
J. Accountability
K. Barriers to Effective Implementation
L. Federal Infrascructure Investment

Thanks to Jim Tate (@jimtate) and John Chilmark (@john_chilmark) for pointing out the report.

Blog World New Media Expo 2009: Medical and Health Care Bloggers

Today I received the speaker list for the MedBlogger Conference associated with Blog World New Media Expo 2009 from Kim McCallister of Emergiblog, co-organizer of the event along with Dr. Val of Better Health.

Blog World New Media Expo 2009 will be held October 15-17 in Las Vegas. The MedBlogger Sessions will be held on October 15. A special thanks to Johnson & Johnson and MedPage Today who are sponsors of the MedBlogger Sessions. More information along with how to register for the conference will be available on the Blog World website in the coming weeks.

I was honored to be invited to be a part of the event and look forward to participating in a great discussion at the conference. Below are the panels and speakers confirmed for the MedBlogger Sessions.

Panel #1 The State of the Health Blogosphere: We've Come A Long Way, Baby
Moderator: Kim McAllister, Emergiblog
Panelist: Kevin Pho, Kevin MD
Panelist: Nick Genes, Blogborygmi
Panelist: Kerri Sparling, SixUntilMe

Panel #2 Staying On The Good Side of HIPAA: Safe and Ethical Blogging Practices
Moderator: Mike Sevilla, Doctor Anonymous
Panelist: Rob Lamberts, Musings of a Distractible Mind
Panelist: Debra Farber, IBM
Panelist: Bob Coffield, Health Care Law Blog

Panel #3 Blogging For Change: How To Influence Healthcare Through Blogging
Moderator: Val Jones, Better Health
Panelist: Gary Schwitzer, Schwitzer Health News Blog
Panelist: Terri Polick, Nurse Ratched's Place
Panelist: Gene Ostrovsky, Medgadget

Panel #4 The Value of Blogs To Hospitals, Industry, and News Organizations
Moderator: Gary Schwitzer, Health News Review
Panelist: Marc Monseau, Johnson & Johnson 's JNJBTW Blog
Panelist: Bob Stern, MedPage Today
Panelist: Paul Levy, Running A Hospital